Dana was born into a family familiar with hemophilia, and she found it easy to get involved, gaining inspiration from her older brother. Now, she's working on behalf of other women with bleeding disorders.
Kendall is a caregiver, a patient, and a nurse in the hemophilia community—she spends a lot of her time thinking about bleeding disorders. She feels it's important to share her knowledge across the community.
Manny's moderate hemophilia diagnosis hasn't stopped him from living a fulfilling life—in fact, it has motivated him to become an advocate and an educator, especially within the Spanish-speaking hemophilia community.
For some, learning to advocate for oneself comes later in life, but for Carl, it started at age 4. Since then, he has become a committed mentor and advocate in the hemophilia community, and he doesn't plan on stopping.
Mild hemophilia can come with a different set of challenges, such as a later diagnosis, less experience with infusions, and uncertainty as to when one is having a bleed. Ben took these on and he's looking forward to what's next.
When Jennifer’s son Nicholas was diagnosed with severe hemophilia shortly after birth, she worried about his future. Then she got involved in the hemophilia community, where she found a wealth of resources and support.
The narratives within this section were provided prior to its initial posting in 2014. While the ages of the people profiled have changed, their stories may still be relevant and of interest to others in the community.