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Female Perspective

Often, hemophilia is thought of as a condition that only impacts males. Over the past several years, however, the topic of women with hemophilia has been receiving more attention in the medical community. This site is intended to be a home for education and resources that shine light on a segment of the community that historically has been underserved. From patients and caregivers to health care providers, the female perspective can be found here.

Women have been involved in Pfizer’s B2B Advisory Board for over 15 years and have endorsed and helped shape many of these resources. We aim to continue to listen to and elevate the voices of females in the hemophilia community.

We hope this page helps build awareness, understanding, and acceptance of women in the hemophilia community.

Perspective: Females With Hemophilia

Hearing from other people with hemophilia can be an important part of making connections between patients. The podcasts, books, stories, videos, and advertorial below all feature stories from women (and some men!) with hemophilia, with the intent of building a sense of community, understanding, and support.

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Podcasts

Using Music as a Creative Outlet

Our usual host, Becky, passes the mic to her daughter Elizabeth, a person with severe hemophilia, to guest host this episode. Elizabeth, who is studying to be a music therapist, chats with Spencer, a musician and teacher who also has severe hemophilia, about how music can make a difference in the lives of people with hemophilia. The pair talk about using music as a creative outlet, how playing instruments impacts them physically, and what they would recommend to help someone connect to music.

Going Away to College

Guest host Matt chats with Elizabeth, a college senior, and Josh, a recent graduate, about managing hemophilia while away at college.

Women With Hemophilia

Elizabeth and Kirstin, who both have hemophilia B, talk with Becky about their experiences as women in the male-dominated hemophilia community.