Information for Women with Hemophilia B
B2B Book: Hemophilia B: Her Voice, Her Life
As awareness regarding manifestations of hemophilia in women is increasing, it is becoming clear that education on this diagnosis is needed in the hemophilia community. Education can be an important component in encouraging women to seek a diagnosis if symptoms and family history are present in their lives.
Historically, hemophilia was believed to affect only males. Because awareness regarding manifestations of hemophilia in women is increasing, there is an opportunity to hear their voices as they share their stories. Women with hemophilia B face unique physical challenges in puberty and childbirth, as well as the symptoms that males experience like bleeds, pain, and damage to tissues and joints.
Addressing these challenges may help to shine more light on a segment of the community that has been underserved in the past. A feeling of loss of control can be common with a chronic condition; by empowering women with hemophilia to be active participants in their care, the sense of control of their situation may increase.