Not actual patients.

Many Faces of Hemophilia B: Challenges and Opportunities

Many Faces of Hemophilia B
Book Details

Many Faces of Hemophilia B: Challenges and Opportunities, was the sixth book in the B2B series. In B2B’s commitment to bring the most relevant and current information to the hemophilia B community, this book, though it may be referenced in other books, was retired in early 2018 because all of the content is now available in greater depth through other books in the full series.

  • “I try to foster healthy self-esteem by trying new things with the confidence of a survivor and the wisdom of a mature bleeder. Chronic illness is a blessing when its management is just part of life.”

    Paul B.
    Patient
  • “I think it is so important to make the chronic illness a nondefining part of life. My daughter has hemophilia B, but that certainly isn’t the most important thing I want people to know about her. We’ve worked hard to make sure we keep hemophilia B in a place of balance in our lives.”
    Becky V.
    Caregiver
  • “I strongly encourage other caregivers to get involved. This gives you the tools and strength to better advocate for your care. It also provides that all-important support system.”

    Nina D.
    Caregiver
  • “I go to my hematologist with the direct intent of discussing my treatment plan and product, not empty minded, waiting for instruction.”
    Felix G.
    Patient
  • “Walking is particularly difficult, so I limp in private and swagger in public.”
    Paul B.
    Patient