“I try to foster healthy self-esteem by trying new things with the confidence of a survivor and the wisdom of a mature bleeder. Chronic illness is a blessing when its management is just part of life.”
Know Your Numbers: Knowledge Is Power discusses the importance of knowing and understanding specific sets of numbers, test values, and other data pertinent to living with hemophilia B through all life stages. Health care professionals who treat people with hemophilia B recommend ways to help patients manage hemophilia B symptoms and make informed medical decisions. It’s important for all people with hemophilia B to understand their numbers in order to better engage in conversations with their health care professionals. This book offers some ideas and education on how to better understand important numbers.