Know Your Numbers: Knowledge Is Power

Book Details

Know Your Numbers: Knowledge Is Power discusses the importance of knowing and understanding specific sets of numbers, test values, and other data pertinent to living with hemophilia B through all life stages. Health care professionals who treat people with hemophilia B recommend ways to help patients manage hemophilia B symptoms and make informed medical decisions. It’s important for all people with hemophilia B to understand their numbers in order to better engage in conversations with their health care professionals. This book offers some ideas and education on how to better understand important numbers.

  • “I try to foster healthy self-esteem by trying new things with the confidence of a survivor and the wisdom of a mature bleeder. Chronic illness is a blessing when its management is just part of life.”

    Paul B.
    Patient
  • “I think it is so important to make the chronic illness a nondefining part of life. My daughter has hemophilia B, but that certainly isn’t the most important thing I want people to know about her. We’ve worked hard to make sure we keep hemophilia B in a place of balance in our lives.”
    Becky V.
    Caregiver
  • “I strongly encourage other caregivers to get involved. This gives you the tools and strength to better advocate for your care. It also provides that all-important support system.”

    Nina D.
    Caregiver
  • “I go to my hematologist with the direct intent of discussing my treatment plan and product, not empty minded, waiting for instruction.”
    Felix G.
    Patient
  • “Walking is particularly difficult, so I limp in private and swagger in public.”
    Paul B.
    Patient