Information on Caring for A Family Member With Hemophilia B
B2B Book: Hemophilia B: A Family Perspective
Hemophilia B affects more than just the individual who has it—it also affects parents, brothers, sisters, grandparents, and other close relatives. Being prepared as a family can help everyone learn how to manage hemophilia and the emotions that accompany it.
Families of someone with hemophilia B may experience many feelings, including shock, worry, blame, denial, guilt, stress, and anger, to name a few. To help with the emotions and challenges that accompany living with hemophilia B, it’s important to create a strong family bond.