Web Sites That Support the Hemophilia Community

World Federation of Hemophilia

• Facts and figures: registry of clotting factor concentrates
• Hemophilia: facts for health care professionals
• Treatment of hemophilia: desmopressin (DDAVP) in the treatment of bleeding disorders: the first 20 years
• Treatment of hemophilia: drugs for HIV infection
• Treatment of hemophilia: hereditary plasma clotting factor disorders and their management
• Treatment of hemophilia: manufactured shoes and orthopedic shoes

Web site: www.wfh.org

Hemophilia Nonprofit Organizations

• The National Hemophilia Foundation (www.hemophilia.org)
• American Association of Blood Banks (www.aabb.org)
• World Federation of Hemophilia (www.wfh.org)
• National Organization for Rare Disorders (NORD) (www.rarediseases.org)
• Hemophilia Federation of America (www.hemophiliafed.org)

Important Government Organizations

• Centers for Disease Control and Prevention (www.cdc.gov)
• National Heart, Lung, and Blood Institute (www.nhlbi.nih.gov)
• National Council on Disability (www.ncd.gov)
• National Disability Rights Network(www.napas.org)
• Office of Disability Employment Policy (www.dol.gov/odep/welcome.html)

Hepatitis Nonprofit Organizations

• American Liver Foundation (www.liverfoundation.org)
• American Association for the Study of Liver Diseases (www.aasld.org)
• Hepatitis B Foundation (www.hepb.org)
• National Hepatitis C Coalition (www.nationalhepatitis-c.org)

Medical Links

• www.medscape.com
• www.cbs.healthwatch.com
• www.medicinenet.com
• www.emedicine.com
• www.webmd.com

HIV/AIDS Nonprofit Organizations
National Hemophilia Foundation and the Hemophilia and AIDS/HIV Network for the Dissemination of Information (HANDI) (www.hemophilia.org/resources/handi.htm)

Other Hemophilia Organizations

• LA Kelley Communications (www.kelleycom.com)

The health information contained herein is provided for educational purposes only and is not meant to replace personal discussions between health care providers and patients. All decisions about patient care must be made with a health care provider who can assess the special needs of each individual patient.